Body Memories: Wellness exams, doctor visits & triggers

I had my annual wellness visit  this past week.

Any kind of doctor visit is triggering for me. But annual exams have more triggers than other kinds of exams.

Anxiety

Anxiety comes from traveling to and from the doctor’s office, making time during the work day to go to the appointment, and meeting (sometimes) new people who will be working on my body.

Body Memories

Body memories come back throughout the rest of the exam and sometimes cause problems getting my vitals, etc. Certain tests can’t be administered either. Not because I don’t want them, but because of how my body automatically reacts (based on past experience) to the exam tools. Shots and blood work have a 50/50 chance of working.

How I Cope

Luckily for me, I have a physician who accepts me as I am, is compassionate, and works with me to get as much done as possible with minimal distress.

Then came the matter of getting used to the new nurses and physicians assistants at the location my doctor moved to this year. They all are kind and caring, but my body and my alters did not care. These people were strangers. While I had a choice of letting them work on me or not, what was the point of a visit if not for the check up?

What worked

  • Being honest about my fears and any potential challenges
  • Repeating myself until the person took notice
  • Using grounding affirmations and deep breathing (silently) when talking to the person didn’t work
  • Letting my body and my alters do what they needed to do in order to protect themselves as long as it didn’t involve harming anyone
  • Being patient with the person and explaining again what is happening and why
  • Talking with my alters and checking with them to decide what happens next – try again or make another appointment
  • Throughout the experience – being respectful, using open communication, asking questions and listening actively, practicing patience, and accepting the other person’s choices without judgement – after all these people are professionally trained and experienced in what they do; I’m the oddball

In the end, my alters only took issue with the blood work. In spite of having to try twice and use two different needles, the physician’s assistant got the blood. Some of the results are a little iffy to me (I didn’t fast that morning), but most are on target.

I have to take a vitamin D supplement (normal) because my body does not make enough or make it as easily as I hope and keep an eye on my iron. If my mind can’t stop ruminating on some of the other results, then I’ll have to follow up with the doctor about that too.

Lessons Learned:

  • Try to have my exam on a Thursday or Friday. My mind and body need time to cope /recover and can’t do that if I have to work
  • Call ahead and ask about fasting; then set a reminder the day before
  • Remember to check in with everyone before the needles go in, especially if the physician’s assistant or nurse or technician does not seem to be taking what I say seriously
  • Then remember to meditate and use grounding so that everyone stays calm and agrees to let the tests, etc. happen – remind them the alternative is having to come back again…
  • When in doubt, skip the online portal and make time for a phone call. It saves a boatload of frustration, anxiety, and panic
  • Facing my fear of doctors feels scary and overwhelming until it’s over. I have hope that some day the scary, overwhelming emotions will feel less intense or (maybe) go away for good.

How do you cope with triggers for necessary events and activities in your life?

Thanks for reading

Alter Post: AlterXpressions – the host reveals herself

Hello Guests,
My name is TJ.  I guess you can call me the host of our expansive system.  But it’s not quite accurate because none of us is ever the host full time.  Not even in the past before anyone knew about alter personalities and Dissociative Identity Disorder.  I’ve always heard voices and made intuitive leaps that defy logic.  And I’ve always been different.
As a child, different meant being a target for bullies and racism.  It meant being too smart for my own good and labeled a nerd with no personality among my peers.  Within my family, being different got me excluded from group activities and punished or made fun of for being too slow, emotional, mouthy, disobedient, or ditsy.  Never for being smart or capable.
I had friends for a little while, but then they slowly disappeared.  As they left, I retreated to my amazing inner world.  When that didn’t work, books were my escape.  Crafts helped too unless Mom found out and decided to interfere.  Then crafts became a punishment.  Either I was with the cult, alone at home, or somewhere supervised by my mother.
The memories are fuzzy, but I do remember the following:
  • Climbing up high to hide from “monsters”
  • Crawling under sofas, beds, etc. to “escape” from something
  • Hiding in cabinets, boxes, closets, etc. and getting punished because no one could find me; then having my hiding places blocked
  • Lots of pain and fuzziness from “medication”
  • Lots of adults and secret games
  • Shame and despair and suicidal thoughts
  • Middle school hell because I got stuck with the “popular” kids
  • High school drama and worse because of “popular” kids, death of family members, being forced to go to prom, and graduation
  • Suddenly losing time  and being abusive and angry all the time without understanding what was happening or why
  • Hating my body and wanting to be invisible – aka negative body image and sense of self
  • Being a social outcast for most of my life because I never learned “proper” social skills
Who am I now?
I am one of many in our system and the face most people in the outside world meet or interact with.  I have a stable job in Corporate America, friends, and loved ones.  Lucky for me, I’ve had the same job for more than 10 years and earned the respect of my co-workers.  They accept my panic attacks and PTSD as part of working with me and value my skills.
The job provided me with mentors and an alternative family that taught me how to be a real person.  From those people, I learned how to be respectful, accepting, honest, and trustworthy.  They taught, through modeling and personal experience, how to interact with people and be social in positive, safe ways.  Without this job, I’d never have gotten away.
My favorite hobbies are: reading, cooking, writing, walking, and sleeping.
When not triggered, I also enjoy knitting, sewing, discovering my personal style, working with my hands, and learning about a variety of topics.
I am interested in alternative medicine, nutrition, personal finance, mental health, intuition, spirituality, wellness, and living a conscious, authentic lifestyle.  I am an empath, a highly sensitive person interested in learning more about angels, spirit guides, guardians, and energy healing.  I want to find ways to work with my alters and integrate so that we all can enjoy life in the outside world.
Personal relationships are difficult because most people can only accept part who I am and reject everything else.  Friendships take time, work, patience, and trust.  Do I want an intimate relationship someday?  Yes.  Will that happen in this life time?  I don’t know.  Do I have hope?  Yes.
Finding a man (because I am heterosexual) who can accept all parts of me sometimes feels like searching for a unicorn.  I mean who could ever accept, not only the darkness inside me, but also that I am a multiple?  Yet I still have hope and am open to all of the possibilities my future holds.  So maybe one day…
Thanks for reading.

Quotes & Affirmations: Love as currency or something else?

The Quote

“Love you can spend like currency isn’t really love.”

From The Winter Long by Seanan McGuire

So what is love?

Not just romantic love, but LOVE in all of its forms.

I don’t know how to describe the feeling.  But I do know that real love is:

  • Unconditional
  • Universal
  • Freely given
  • Freely received

Anything else is a parody, or worse a lie.

Why share the quote?

It’s a good reminder (for me at least) that love and approval are different.

Love can exist without respect and trust, but not without acceptance or compassion.

Yesterday this quote helped me maintain perspective when flashbacks of my family and former friends hit hard.  Maybe it will help you too.

Thanks for reading.

Shame: A letter to my shame

In past posts, I’ve talked about how journaling triggers anger and other negative feelings inside me instead of helping me cope.

Journaling also felt scary and overwhelming because it brought out thoughts, feelings, memories, and sensations I wasn’t ready to acknowledge or accept about myself.  Stuff that made me feel like a monster or an alien or out of place in this world because my sensory perception and intuition are different from “normal” or “average” people.

I didn’t want to put those words on paper.  Not again.  Because putting words on paper makes them real.  And gives others a glimpse into my private world.  Or an excuse to manipulate/abuse/control/shame/hurt me.

But something happened in the last few weeks.  Something inside me has shifted.  Maybe it’s living in a more open and accepting city.  Maybe it’s the next cycle in my recovery.  Or maybe I am finally ready to accept the parts of me that attracted the monsters back then.

Either way, I started journaling again.  And collecting crystals.  And inviting plants into my home as roommates.  The crystals help me feel safe and protected.  The plants bring joy and clean energy into my apartment.  The journaling helps me gain closure with the monsters in my past without having to confront them physically or over the phone.

So, here is the letter I wrote to my shame.  Maybe it will inspire you to accept that whatever trauma happened to you wasn’t your fault either.

Dear Shame,

You think you are still ingrained in me.  But you are not.  That shivery, shaking feeling you experience is the moors connecting us falling apart.  You go home.  To the ones who created you.  To the ones you belong to.

Not me.  Not us.

Them.  The monsters.

As such, you are also a monster.

Monster #23 ->beyond (past, present, future)

When your cause is just, your purpose to educate and inform, you are welcome, valued, respected and accepted by all of us.  Otherwise, shame, please go home and leave us alone.

Thanks for reading

DID Post: What does my internal system look like?

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I haven’t written much about DID lately.  That is because my alters and I have been quietly working on internal strategies related to communication and organization.  We’ve been creating a map of where everyone lives and trying to establish coping strategies to help with shame and backlash that comes from self-expression and communication related to switching.  This way, even when alters go away for alone time or get lost, they have a way to find home again.

My first DID homework

After my therapist finally admitted to me that I had DID and why she didn’t tell me sooner, she gave me a homework assignment.  It was a long-term, multipart project that ended up taking months.

The assignment: identify my alters and map out what the system looked like visually.

My first attempt identified 20 alter personalities and looked like an idea map (brainstorming tool) of bubbles.  The next one had 60 alters and looked like a flow chart.  Finally, a flow chart and idea map became a spider web.  But no one inside liked that version.  For almost a year, I believed our system topped out at 60 alters, including me.  But then I started hearing a voice speaking in Spanish.  And another two or three played songs related to how they felt.  Many sent pictures or movies.

In fact, 80 alters showed up for the next roll call.

By now, we’d stopped trying to map out the ever-changing landscape and trying to identify the alters with names.  No one had a concrete visual of safe spaces.  And many alters changed their names as they grew and changed through the recovery process.  When I explained this to my therapist, she agreed to put this exercise aside and concentrate on other parts of IFS therapy.

2014 is the year I legally changed my name and finally started to feel safe.  It’s also the year our last 7 alters appeared to the system.  They appeared just after I re-read a book called Amongst Ourselves and started reading/listening to Pema Chodron’s books about fear, courage, and compassion.  And that’s when I realized we were coming at the homework assignment from the wrong perspective.  Instead of going back to our roots (pun intended) and looking for a nature-based metaphor, we had been using logical tools to draw a reasonable representation of an ever-changing, chaotic landscape.

What our internal system looks like

My internal system looks like a bent, twisted, stunted tree with a short trunk and many strong branches that extend in every direction instead of a straight, tall one with a strong trunk and perfect horizontal branches.  Our underground root system is deep and strong like any other tree, but visually, we look different from maples and pines and cedars, etc.  More like an oversized bush that got lifted during a wind storm and continued growing.  Or maybe like a bamboo that a got knotted and twisted into various shapes before continuing to grow to maturity.

IMG_7080  This tree reminds me of the knotted bamboo metaphor above.  I wrote the first draft of this post before finding the photo, but decided not to change either description.  It’s not often I find a mature tree that represents my internal family so well.

But this is important to us because with switching and communication comes a giant helping of shame and self-hatred.  For too many years, we all were taught not to communicate with each other, not to work together.  And when caught, we were abused even more – many of my alters are mouthy and assertive.  They speak their minds and do not hold back.  This was seen as rebellion and defiance; two actions that caused any and all perpetrators to escalate their tactics in order to shut everyone down again.

So you probably will be seeing more posts about DID and coping strategies we use to help with anxiety induced switching, panic attacks, shame, and other triggers.

You will also see a few posts about mindfulness and meditation as relates to trauma and recovery.

Thanks for reading.